Uncovering the signs can change the story
For many families, relentless seizures are clues that help uncover an underlying diagnosis—one that opens up a community of support, connections to foundations, different treatment options, and more. In this section of the site, we share candid stories from families who found a diagnosis. It wasn’t always easy, but they never gave up hope to get the answers they needed.
Have you started the conversation with your doctor?
While everyone’s diagnosis story is different, many started by trusting their instincts and having a conversation with their doctor. Knowing what questions to ask and how to explain the signs you are seeing are the first steps to getting a more specific diagnosis.